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Brain Tumor

Organizations

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Our program is also nationally recognized by U.S. News & World Report as one of the best pediatric neurology and neurosurgery programs.


Links available on the following pages are not necessarily endorsed, reviewed, or sponsored by Miami Children's Hospital. By clicking on any of the links, you will be leaving MCH's Website.

National, Regional, and Professional Organizations

There are groups of committed individuals -- professionals, parents, and volunteers -- whose efforts relate to childhood CNS tumors. They vary in organization in that they may be formal and structured or casual and community based. Many participate and coordinate fundraising with specific goals in mind (Projects, Advocacy, and Legislation).

Although some organizations have comprehensive websites, many still don't. Besides, the most effective way to reach those that need their services is in hospitals or communities... at the frontline. For organizations that do not have an online presence, you should pick-up the phone and ask for their mailings since they are often great sources of printed information.

National

Information and resources, overview of definitions, trials and links to a dictionary can be found at the American Brain Tumor Association.

The Brain Tumor Society gives you access to order forms for print literature, newsletter and articles online and overviews of tumors and treatments.

Access a complete pediatric reference handbook, also available in French, at The Brain Tumor Foundation of Canada

Candlelighters Childhood Cancer Foundation is a good source for print materials including handbook and newsletter.

Candlelighters Canada offers a support and information network as well as links to other Candlelighter groups. Resource catalogue available in French and English.

The Children's Brain Tumor Foundation brings you information about the services of the foundation and an online parent's resource guide(also available in book form).

Get a Directory and links to camps for children with cancer at the Children's Oncology Camping Association, Intl.

The National Brain Tumor Foundation describes the mission and services offered and provides general information about brain tumors.

National Information Center for Children and Youth with Disabilities

Children's Tumor Foundation provides resources and services that relate to neurofibromatosis.

Our Kids

Pediatric Brain Tumor Foundation of the United States funds research programs, conferences, family support programs, education and a newsletter. They conduct Ride for Kids events and support the Central Brain Tumor Registry.

Rory David Deutsch Foundation is a national foundation which funds research in medical laboratories that study pediatric brain tumors.


Professional

Receive membership information about the American Academy of Pediatrics and general pediatric resources, newsbriefs and links.

The American Board of Pediatric Neurological Surgery lists members and requirements for certification.

The American Neurological Association is a professional society of academic neurologists and neuroscientists.

The American Society of Pediatric Neurosurgeons provides a listing of neurosurgeons who are members and a newsletter.

The Association of Pediatric Oncology Nurses provides a newsletter and educational publications.

Get information about the American Society of Pediatric Hematology / Oncology's meetings, journal and membership.

Neurosurgery On-call is the Official web site of The American Association of Neurological Surgeons.

Links available in this page are not necessarily endorsed, reviewed, or sponsored by Miami Children's Hospital. By clicking on any of the links, you will be leaving MCH's Website.