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Institutions and Travel Arrangements
If you are here looking and reading, then you soon realize that children's tumors of the CNS are relatively rare. It is difficult for individual doctors, hospitals, or centers to specialize in treatment of these specific diseases considering the few cases that they encounter. A search for specialists in pediatric neuro-oncology is recommended. You may be looking for a second opinion or want to investigate treatment centers that focus on a particular cancer type or offer clinical trials specific to a child's disease.
The division of Neurosurgery at Nicklaus Children's Hospital, formerly Miami Children's Hospital, was founded in the hospital's early beginnings and offers experience and expertise. The success of our Neurosurgery team and program place it at the forefront of pediatric neurological surgery.
Although geographical location may limit choices, some parents and their child with cancer may decide to travel great distances for a therapy or evaluation and then return home for follow up by local professionals. You can tap into current medical technology, better resources, and psychosocial support... in person or via the Internet.
Pediatric Brain Tumor Consortium
A network of medical centers, funded by NCI, that will evaluate promising treatments for children with brain malignancies.
Find information related to specific cancer types, treatments, as well as tips on navigating the healthcare system, and how to get support.
The following organizations provide aid to families that decided to travel when seeking cancer treatment.
If a family has to take their child far from home for treatment, they should speak with hospital social services about transportation and accommodations. Airlines may offer courtesy fares. Special lodgings may be available near the hospital.
The Air Care Alliance
A nationwide association of humanitarian flying organizations dedicated to community service whose activities involve health care, patient transport, and related kinds of public benefit flying.
Corporate Angel Network
Provides free air transportation for cancer patients traveling to and from recognized treatment centers in the US. Arranges for patients to use empty seats on corporate aircraft.
Healing the Children
Dedicated to healing children around the world. Chapters across the country bring children to cities in their area, find medical professionals who will donate their services, and assign each child to a volunteer host family.
National Association of Hospital Hospitality Houses
Program that promotes and assists not-for-profit programs that provide lodging and supportive services in a caring environment for families receiving medical care away from home.
Makes referrals for any patient needing to travel to a distant specialized medical facility for evaluation, diagnosis or treatment.
Ronald McDonald House Charities
Supports Ronald McDonald Houses which provide a "home-away-from-home" for the families of seriously ill children receiving treatment at nearby hospitals.
For additional information or to make an appointment, please contact the Nicklaus Children's Hospital, formerly Miami Children's Hospital, Division of Neurosurgery at (305) 662-8386.
Additional Hospital Resources