Effective date: April 14, 2003
(Revised September 23, 2013)
THIS NOTICE DESCRIBES HOW MEDICAL INFORMATION ABOUT YOU MAY BE USED AND DISCLOSED AND HOW YOU CAN GET ACCESS TO THIS INFORMATION.
PLEASE REVIEW IT CAREFULLY.
As a parent/legal guardian of a minor patient at Nicklaus Children's Hospital, you are the patient’s “personal representative.” When reading this Notice please understand that when we use the term “you” we mean the pediatric patient.
Applicability of Notice
This Notice describes the privacy practices of Nicklaus Children's Hospital and its facilities and Affiliated Entities, which are set forth on the signature page. Each of these Affiliated Entities are legally separate covered entities, but for purposes of the HIPAA privacy rule designate themselves as a single covered entity and will each follow the terms of this Notice. For purposes of this Notice, the terms “we” and “our” are used in this Notice to refer to Nicklaus Children's Hospital and its facilities and Affiliated Entities. Each of these Entities may share information with each other for purposes of treatment, payment or health care operations as described in this Notice.
Nicklaus Children's Hospital is required by law to maintain the privacy of health information about you that can identify you (“Protected Health Information” or “PHI”), to provide you with this Notice of our legal duties and privacy practices with respect to your PHI, to notify you following a breach of protected health information and to abide by the terms of this Notice currently in effect. We reserve the right to change this Notice. We reserve the right to make the revised or changed Notice effective for medical information we already have about you as well as any information we receive in the future. We will post a copy of the current Notice in each of the locations identified below. The Notice will contain the effective date. A copy of the current Notice will be made available to you when you initially register with Nicklaus Children's Hospital for treatment or services, upon your request, and on subsequent visits if the Notice has been revised.
We understand that all information about you and your health is personal. We are committed to protecting this information. When you receive services at Nicklaus Children's Hospital, a medical record is created. This record describes the services provided to you and is needed to provide you with quality care and to comply with certain legal requirements. This Notice applies to care generated by Nicklaus Children's Hospital, whether made by a Nicklaus Children's Hospital employee or a doctor involved in your care at Nicklaus Children's Hospital. This Notice tells you about the ways in which we may use and disclose your medical information. It also describes your rights and certain obligations we have regarding the use and disclosure of your medical information.
HOW WE MAY USE AND DISCLOSE YOUR HEALTH INFORMATION
The following categories describe different ways in which we use your health information within Nicklaus Children's Hospital and may release your information to persons and entities outside of Nicklaus Children's Hospital. We have not listed every use or disclosure within the categories, but all permitted uses and disclosures will fall within one of the following categories:
Uses and Disclosures for Treatment, Payment and Health Care Operations: Your PHI may be used to treat you, to obtain payment for services provided to you and to conduct “health care operations” as described below:
Treatment: Your health information may be used and disclosed to provide treatment and other services to you – for example, to diagnose and treat your injury or illness. We may disclose your health PHI to doctors, nurses, technicians, medical students, interns, or other personnel who are involved in taking care of you during your visit with us or to individuals outside of Nicklaus Children's Hospital who are also part of your healthcare team.
Payment: Your PHI may be used and disclosed to your insurance company or other third party to collect payment for services. For example, we may need to give your health plan information about surgery you received while here so that they will pay us or reimburse you. We may also tell your health plan about a treatment you are going to receive to obtain prior approval or to determine whether your plan will cover the treatment. Exception: If you pay out of pocket in full for a health care item or service, you have the right to restrict certain disclosures of your PHI to your health plan (see section on ‘Right to Request Restrictions’).
Health Care Operations: Your PHI may be used and disclosed in connection with our health care operations. For example, your PHI may be used to conduct quality assurance activities, such as for evaluating the quality and competence of physicians, nurses and other health care workers; to perform customer service activities, or for investigating complaints. We may also disclose this information to our business associates who assist us with administrative and other functions. We require our business associates to appropriately safeguard the health information of our patients.
Appointment Reminders/Treatment Alternatives/Health-Related Benefits and Services
We may use and disclose your PHI to contact you to provide appointment reminders or information about treatment alternatives or other health-related benefits and services that may be of interest to you.
Nicklaus Children's Hospital may use or disclose health information about you to contact you in an effort to raise money for our organization and its operations. We may disclose this information to the Nicklaus Children's Hospital Foundation to assist us in our fundraising activities. Only contact information such as your name, address and telephone number, and the dates you received treatment or services at Nicklaus Children's Hospital would be released. You have the right to opt out of fundraising communications at any time and your request must be honored. If you would like to opt-out of receiving fundraising communications, please notify our Privacy Officer in writing or make your opt-out request using the method provided to you with every fundraising communication.
SITUATIONS WHERE YOU HAVE AN OPPORTUNITY TO AGREE OR OBJECT TO USES AND DISCLOSURES OF YOUR PHI
Nicklaus Children's Hospital may include your name, location in the hospital, general health condition (e.g. fair, stable, etc.), and religious affiliation in a patient directory without obtaining your authorization unless you object to inclusion in the directory. This information, except for your religious affiliation, may be released to people who ask for you by name. Your religious affiliation may be given to a member of the clergy, even if they don’t ask for you by name. This is so your family, friends and clergy can visit you in the hospital and generally know how you are doing.
Individuals Involved in Your Care or Payment for Your Care
Your PHI may be disclosed to a family member, friend or other person to the extent necessary to help with your health care or with payment for your health care. Before we disclose your medical information to a person involved in your health care or payment for your health care, we will provide you with an opportunity to object to such uses or disclosures. If you are not present, or in the event of your incapacity or an emergency, we will disclose your medical information based on our professional judgment of whether the disclosure would be in your best interest.
SPECIAL SITUATIONS THAT DO NOT REQUIRE YOUR AUTHORIZATION
In certain circumstances, federal or state laws may require or allow us to provide your PHI to the following agencies without any oral or written permission from you:
Public Health Authorities/Health Oversight Agencies
We may disclose your medical information for public health activities, including for the reporting of disease, injury, vital events such as birth or death, and for the conducting of public health surveillance, investigation and/or intervention. We may disclose your medical information to a health oversight agency for oversight activities authorized by law, including for audits, investigations, inspections, licensure or disciplinary actions, administrative and/or legal proceedings or actions.
Abuse or Neglect
In accordance with federal and state law, we may disclose your PHI when it concerns abuse, neglect, or domestic violence to you. We are required to report suspected child or vulnerable adult abuse or neglect to the Florida Department of Children and Families Central Abuse Hotline.
Department of Health and Human Services/Florida Agency for Health Care Administration (the “Agency”)
We may disclose your PHI when required by the United States Department of Health and Human Services as part of an investigation or a determination of our compliance with relevant laws. We may disclose your PHI to the agency for purposes of health care cost containment or in response to a subpoena.
In Connection with Judicial and Administrative Proceedings
We may disclose your PHI in any civil or criminal action, unless otherwise prohibited by law, in response to a court or administrative order or if compelled by subpoena at a deposition, evidentiary hearing, or trial, but only if efforts have been made to tell you about the request.
We may disclose your PHI to a law enforcement official or the medical examiner to alert them about a death we believe may be the result of criminal conduct. We may notify a law enforcement official if you were injured in a motor vehicle crash and your blood alcohol level is above the legal limit. We are required to report to local law enforcement officials any gunshot wound or life-threatening injuring indicating an act of violence.
National Security and Intelligence Organizations
We may disclose your PHI for specialized governmental functions, such as national security and intelligence activities, and for the provision of protective services to the President.
Coroners, Medical Examiners, and Funeral Directors
We may disclose your PHI to coroners, medical examiners or funeral directors consistent with applicable law to carry out their duties.
Organ and Tissue Donation Organizations
If you are an organ donor, we may disclose your medical information to an organ donation and procurement organization.
Workers’ Compensation Agents
We may release your PHI for workers’ compensation or similar programs.
Military Command Authorities
If you are a member of the armed forces, we may disclose your PHI as required by military command authorities.
We may disclose your medical information to a correctional institution having lawful custody of you if doing so would be necessary for your health and the health and safety of other individuals.
Emergency Circumstances and Disaster Relief
Your PHI may be used or disclosed to a public or private entity authorized by law or by its charter to assist in disaster relief efforts (such as the Red Cross).
To Avert a Serious Threat to Health or Safety
We may use and disclose medical information about you when necessary to prevent a serious threat to your health and safety or the health and safety of the public or another person. Any disclosure, however, would only be to a government agency or authority that is able to help prevent the threat.
As Required by Law
We will disclose your PHI when required to do so by federal, state or local law.
If a use or disclosure of health information described above in this Notice is prohibited or materially limited by state law, it is our intent to meet the requirements of the more stringent law.
SITUATIONS THAT REQUIRE YOUR AUTHORIZATION
Special Protections for HIV, Alcohol and Substance Abuse, Mental Health, and Genetic Information
State and/or federal laws may place restrictions on the manner in which specific types of PHI may be used and/or to whom such medical information may be disclosed, such as HIV status, alcohol and substance abuse treatment, psychiatric treatment, and genetic information. In those instances where the use and/or disclosure of this PHI is specifically restricted, we will seek appropriate authorization from you, your legal representative or a court of law/administrative tribunal before using or disclosing this information.
We will not use your PHI for marketing purposes without your authorization. If you have consented to receive marketing information but no longer wish to receive further information, please notify our Privacy Officer in writing to make your opt-out request.
Sale of PHI
We will not disclose your PHI in return for any financial compensation without your authorization.
Research That Does Not Involve Your Treatment
Under certain circumstances, we may use and disclose medical information about you for statistical and scientific research purposes, provided that your identity is protected or we have received your written authorization.
Research Involving Your Treatment
When a research study involves your treatment, we may share your health information with researchers after you have signed a specific written authorization, or in very limited circumstances, when the Nicklaus Children's Hospital Institutional Review Board (IRB) issues a waiver after having ensured that safeguards are in place to protect your privacy. An IRB is a committee responsible for protecting individual research subjects and ensuring that research is conducted ethically. All research projects are subject to special approval by the IRB. You will not be enrolled in a research project that is not reviewed and approved by an IRB.
Other Uses and Disclosure of Your PHI
Other uses and disclosures of your PHI not covered by this Notice or the laws that apply to Nicklaus Children's Hospital will be made only with your written permission (authorization), which authorization may be revoked as described below.
YOUR RIGHTS REGARDING HEALTH INFORMATION ABOUT YOU
Right to Request Restrictions
You have the right to request limits on the use of your medical information for either treatment, payment or health care operations. You also have the right to request a limit on medical information we disclose to someone who is involved in your care or the payment of your care, such as a family member or friend. For example, you could ask that we not disclose information about a surgery you had. To request restrictions, the request must be made in writing to the Nicklaus Children's Hospital Health Information Management Department. We are not required to agree to your request except in limited circumstances where you paid out of pocket and in full for the items or services and have requested that we not disclose your PHI to a health plan. If we do agree we will comply with your restrictions unless the information is needed to provide emergency treatment.
Right to Request Confidential Communications
You have the right to request that we communicate with you about medical matters in a certain way or at a certain location. For example, you can ask that we only contact you at work or by mail. Your request must specify how or where you wish to be contacted. We will accommodate all reasonable requests. To request restrictions, the request must be made in writing to the Health Information Management Department.
Right to Inspect and Copy
You have the right to inspect and/or receive a copy of any medical information maintained about you that may be used to make decisions about your care or payment for your care. Typically, this will include your medical and billing records, but not psychotherapy notes. If your PHI is maintained in an electronic format (known as an electronic medical record or an electronic health record), you have the right to request that an electronic copy be given to you or transmitted to another individual or entity.
To inspect and/or get a copy of your medical or billing records you must submit your request in writing to:
Nicklaus Children's Hospital, formerly Miami Children's Hospital
Health Information Management Department
3100 S.W. 62 Avenue
Miami, Florida 33155-3009
We may charge a reasonable fee for copying and mailing the records. We may deny your request in certain limited circumstances. If your request is denied, you may request that your denial be reviewed. Such reviews will be performed by an independent licensed healthcare professional chosen by our Privacy Officer. We will comply with the outcome of the review.
Right to Amend
If you feel that information about you is incorrect, you may ask us to amend the record. To request an amendment, the request must be made in writing to the Health Information Management Department at the address noted above. In addition, you must provide a reason that supports your request. We are not obligated to comply with your request to amend your record.
Right to Revoke your Authorization
If you provide us with authorization to use or disclose medical information about you, you may revoke that authorization, in writing, at any time. If you revoke your authorization, we will no longer use or disclose medical information about you for the reasons covered by your written authorization. We are unable to take back any disclosures we have already made with your permission and we are required to retain our records of the care that we provided to you. A form of written revocation is available upon request from our Health Information Management Department.
In certain instances, you have the right to be notified in the event that we, or one of our Business Associates, discover an inappropriate use or disclosure of your health information. Notice of any such use or disclosure will be made in accordance with state and federal requirements.
Accounting of Disclosures
You have the right to request an "accounting of disclosures." This is a list of disclosures that we have made of your PHI. We are not required to list certain disclosures, including (1) disclosures made for treatment, payment, and health care operations purposes, (2) disclosures made with your authorization, (3) disclosures made to create a limited data set, and (4) disclosures made directly to you. You must submit your request in writing to our Health Information Management Department. Your request must state a time period which may not be longer than 6 years before your request. Your request should indicate in what form you would like the accounting (for example, on paper or by e-mail). The first accounting you request within any 12-month period will be free. For additional requests, we may charge you for the reasonable costs of providing the accounting. We will notify you of the costs involved and you may choose to withdraw or modify your request before any costs are incurred.
Right to a Paper Copy of this Notice
You have a right to a paper copy of this Notice, even if you agreed to receive it electronically. Please contact us as directed below to obtain this Notice in written form.
Foreign Language Version
If you have difficulty reading or understanding English, you may request a copy of this Notice in Spanish or Creole.
QUESTIONS OR CONCERNS
If you would like more information about our privacy practices or have questions or concerns about this Notice, please contact our Privacy Officer at the number listed below.
If you believe your privacy rights have been violated, you may file a complaint, in writing, to the Nicklaus Children's Hospital Privacy Officer located at:
Nicklaus Children's Hospital, Privacy Officer
3100 S.W. 62 Avenue
Miami, Florida 33155-3009
Telephone: (786) 624-3838
or you may contact the Secretary of the U.S. Department of Health and Human Services (HHS).
You will not be penalized or retaliated against in any way for making a complaint.
Nicklaus Children's Hospital FACILITIES AND AFFILIATED ENTITIES
This Notice applies to the privacy practices of the following Nicklaus Children's Hospital facilities and Affiliated Entities:
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Hospital, formerly Miami Children's Hospital
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Dan Marino Outpatient Center
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Doral Outpatient Center
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Miami Lakes Outpatient Center
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Hospital Rehabilitation Services – Miami Lakes
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Midtown Outpatient Center
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Palm Beach Gardens Outpatient Center
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Palm Beach Gardens Outpatient Center
- Variety Children’s Hospital d/b/a/ Nicklaus Children's Palmetto Bay Outpatient Center
- Variety Children’s Hospital d/b/a/ Nicklaus Children's West Kendall Outpatient Center
- MCH Anywhere®
- Miami Children's Health System Foundation, Inc.
- Miami Children's Research Institute, Inc.
- Miami Children's Ambulatory Surgery Center, LLC
- Nicklaus Children's Hospital, PRPG, LLC
- Children's Health Ventures, Inc.
- Kidzstuff, Inc.
- Miami Children's Health System Management Services, LLC
- Pediatric Specialty Group, Inc.